Summary of Donations to Pipers Wishes
On the 15th of March 2022, Piper was diagnosed with Riboflavin Transporter disease, formally known as BVVL. This is a debilitating, life shortening neuro dengenerative genetic disorder. The loss of motor neurons affected in RTD leads to progressive weakness and wasting in muscles, including those muscles used for movement, breathing and swallowing. The loss of sensory neurons in RTD can lead to issues including hearing loss, vision loss and Gait ataxia. There is no cure for RTD and only treatment is life long high doeses of Riboflavin. This diagnosis has devastated the family so myself ( Piper
| Offline donations: | £0.00 |
Notes to the above:
Offline donations include cash, cheques and any other donations paid directly to the fundraising organisation. This offline donation total is updated periodically by the Tribute Guardian in conjunction with the fundraising organisation.
